Still in the Shadows with the Future Uncertain

FINDS Report Cover

Still in the Shadows with the Future Uncertain

A report on family and individual needs for disability supports (FINDS)
Summary of Key Findings and A Call To Action
June 2011

The Family and Individual Needs for Disability Supports (FINDS) survey was conducted online from July 22, 2010 to October 31, 2010. The survey was widely disseminated through a variety of groups, including: the Association of University Centers on Disabilities, the American Association on Intellectual and Developmental Disabilities, the American Network of Community Options and Resources, the National Association of Councils on Developmental Disabilities, Self-Advocates Becoming Empowered, the National Council on Independent Living, Best Buddies, Easter Seals, the Autism Society of America and state and local chapters of The Arc.

Families from all 50 states and DC completed surveys. People with disabilities responded from 38 states and DC. Nearly 5000 caregivers responded (4,962) as did 558 people with disabilities. The vast majority of caregiver respondents were family members (95%) who are living with their family member with disabilities (75%). Additional detail regarding respondents is available in the FINDS Technical Report.

The results are representative of the people who heard about the survey and responded and may not be representative of all people with disabilities and their families. Data analysis was performed by Lynda Anderson, Sheryl A. Larson, Allise Wuorio and K. Charlie Lakin of the Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.